설명  Madison was diagnosed with neonatal Marfan syndrome, Its a genetic disorder that affects the body’s connective tissue that holds all the body’s cells, organs and tissue together. It also plays an important role in helping the body grow and develop properly. She had surgery to place a GJ tube for feeding and also had a tracheotomy to help her breath. Many issues with her heart and will need at least 3 more surgeries as she grows bigger. Tickets & donations: https://soar-for-maddie.eventbrite.com

행사 참가자:  일반에 공개

워킹 인  수락됨

행사 언어:  English